A couple of weeks into the New Year, I decided to make a concentrated effort to take better care of my body. This was going to mean massive weight loss. But I knew that wouldn’t be enough. So I also joined Curves in order to get exercise thrown in the mix. After a few sessions, I noticed bruising on my arms & legs. Being the klutz I’ve always been, I didn’t think anything about it at the time. But as days passed, I noticed more bruises, even though I was making a concentrated effort to not do anything that might cause bruising. Then I started getting bruises in unusual places, like my abdomen, inside my thighs, etc. Tony kept telling me I needed to go to the doctor to see what was causing the bruises. He joked that people might start to think he was beating me.
The Blood Blisters
On the evening of Friday, February 13 I could feel something in my mouth like ulcers, but not. When I looked in the mirror, they were small blood blisters. This, we knew, was not normal. Tony was almost in a panic and wanted to take me to emergency. Instead, I called my cousin Shawn Patton, who was a nurse. He assured us it was not an emergency issue, but advised me to see my primary care physician right away. I knew she (Dr. Melissa Benavides) had office hours on Saturdays, for “emergency” type illnesses. So my plan was to go in the next morning. So Saturday, February 14, we awoke to the most beautiful blanket of snow you’ve ever seen. About 3-4” worth. Since the blood blisters were gone, I decided my condition wasn’t serious enough to risk life and limb on icy roads, so I decided to wait until Monday. I called her office on Monday but she couldn’t see me until Tuesday. So on Tuesday she had blood drawn for testing. She told me she would be out of the office on Wednesday but would call me on Thursday. On Wednesday at 12:20 pm one of her associates called me at work & said the results of the blood work were in and I had a serious blood disorder. He said all indications pointed to acute leukemia. My head started spinning, my brain shut down. I could hear him speaking and I was struggling to focus on what he was telling me. He said I needed to leave work immediately to go see a hematology oncologist named Dr Singh*. He gave me the address and told me they were expecting me. Well, my supervisor was at lunch, everyone who would be available for relieving the front desk was at lunch, it would be another 40 minutes until anyone would be back to relieve me. It looked like my only alternative was to put the phones on night ring. Then I remembered Lisa Standridge was the late sales service person that day & had worked the front desk for many years before (she had been Hardy’s favorite). I was hysterical, I called Lisa crying & told her I needed her up front right now. She came immediately, followed by Dixie Polster. I told them I had to leave because the doctors thought I had leukemia. In the mean time Dr Singh’s office called to tell me he was not at the address I had been given, but at another address. Then Dr Singh called & told me not to panic (too late), that it was treatable. Dixie drove me to the doctor’s office since I was in no shape to drive myself. I called Tony on the way, and he met me there.
The Doctor’s Office
At Dr Singh’s office I was given a bone marrow biopsy (which was quite uncomfortable). The initial plan was for me to lay there a while until the bleeding stopped, go home to pack for a long hospital stay, then go check into the hospital (Harris HEB). They were already expecting me and had assigned me to room 203. While lying on the exam table, Dr Singh was able to validate the initial diagnosis: acute myeloid leukemia (AML). Normal WBC (white blood cells) is about 4,000 to 10,000 per micro liter. Test results showed that I had 16. Additionally, because my platelet count was so low, I had no clotting factor, so I was basically bleeding on the table the whole time. Just laying there in a pool of blood. It wasn’t until the nurse (Sonya) helped me sit up that we discovered it. I took off my pants, panty hose and blouse, rinsed them all out in cold water in the sink in the doctor’s office. Then Sonya and I towel-dried them with hundreds of paper towels. That in itself was quite comical. Anyway, that left out going home to pack. Tony had not come in our car: he was in the midst of car clean-up on a couple of Credit Union cars and wasn’t even in his car that day. So he had come up the doctor’s office in a car that belonged to the Credit Union. So now we were faced with the problem of getting to the hospital without getting blood all over this car that didn’t belong to us. Well, my husband is very ingenious: he removed the floor mats from the floor, flipped them upside down so that the rubber bottoms were facing up, and I sat on them (Sonya had gotten me a blanket from the infusion room to wrap around my mid-section so I could walk out of the clinic and also to protect the car from any future hemorrhaging. So with all that in place, Tony took me straight to the hospital.
The Hospital
After getting me settled in a room, he went home with my list of what to bring back & who to call. He of course called my supervisor at Bates, Stephanie Smith. He also called our church and our Bible class teacher, Johnny Wilbanks.
Of course, I had to notify my parents. They had made a quick turn-around trip to Fort Worth that day for the funeral of Daddy’s good friend Buster Fortenberry. They had no cell phone but needed to be told. I called my cousin Shawn Patton, told him the situation, and asked him & Dee (his girlfriend at the time - they lived about 10 minutes from Mom & Dad) to go over to Mom & Dad’s when they got back from Fort Worth and tell them. I knew they were better equipped to explain the condition and take care of any health problems that might arise as a result of the news, since they were both nurses.
The first night, Letty Peters and Lety Hita came over. Johnny Wilbanks came over & prayed with us. It meant so very much to me. Then later Kelly Felps came by to pray with me. Between Johnny Wilbanks and Kelly Felps, both elders at our church, they got me on prayer lists on 4 continents! At some point, I think the first night, my cousin, Kent, came to see me. I’m still not sure how he found out, but he was there.**
The Pain
I don’t remember much after that other than being in a lot of pain. I remember the pain being so bad that I was screaming & begging to just let me die. I’m not sure I remember when my parents came, but I do remember being in so much pain that once when I was crying I could see my Daddy sitting in a chair sobbing. All I remember was that my legs hurt and nothing seemed to help. I remember having to drink 2 bottles of a white milky substance and was then taken downstairs for some tests. The elevator ride made me extremely nauseous and I threw up the whole mess, including breakfast as soon as we got downstairs. For the next few days, all I remember was throwing up a lot, having leg or back pain and being taken downstairs a lot for tests. Once, I remember being told this one test would take about 3 hours. I had already been waiting about 30 minutes before they started, then it seemed to last forever. I asked how much longer and they told me there was still about 1 hour to go. I became hysterical and told them no, just let me die. I told them to tell my husband I loved him, tell my daughter I loved her and was proud of her and tell my parents I loved them, but I couldn’t endure that any longer. They stopped the procedure and took me back to my room.
At some point Dr Singh moved me to room 212, because it had a Heppa filter. And since my white cell count was so low, I could not risk any kind of infection. I wasn’t allowed live plants or cut flowers, no raw vegetables, no raw fruit (everything had to be cooked to death!), and visitors were asked to wear surgical masks and either had to wear surgical gloves also or wash their hands upon entering my room.
Bates Container
I was still in a lot of pain most of the time and frequently being given morphine. My parents were there all day every day, thanks to the generosity of Bates. Erik Larsen, their van driver/courier, would come by our house each morning to pick them up and bring them to the hospital. Then each evening he came up the hospital to take them home. Tony would come by every night after work. I slept most of the time but we prayed together every day. I wasn’t allowed visitors except family, so Mom put a notebook next to the door of my room for visitors to sign. A couple of elders from the church came by and signed the book, Dwayne Jenks & Johnny Wilbanks came in and would always pray with me.
Pat Fernandes came by every day on her lunch hour. Since I wasn’t supposed to have any visitors except family, I told the nurses she was my sister. Pat’s boss, Ron Welch, told her she could have as much time during the day as she needed to help Tony take care of me. She would come and sit with me, talk to me, and tell me the latest Bates doins. She always told me she loved me. On the days that my legs would ache terribly from the chemo, she would rub my legs, arms, whatever hurt. She would put lotion on my arms and legs, since the chemo would dry out my skin so much. Once, she even shaved my legs for me. On days she couldn’t come at lunch, she would call to apologize for not coming, but would show up that evening.
The pain and discomfort was so intense. Dr Singh had orders for me to receive morphine as needed. I needed it a lot. One of my night nurses, Janie, was so cute. She would come into my room when she thought I might want to go to sleep and ask if I was ready for my “cocktail.” My “cocktail” consisted of morphine (for paid management), Ativan (to help me relax) and Ambien (a sleeping agent). Quite often, after one of Janie’s “cocktails,” I would have visits from the Care Bears or My Little Pony and Rainbow Bright.
Mouth Sores
As a result of the massive amounts of chemo-therapy I was receiving, I developed mouth sores. They were unbelievably painful. Every time I swallowed, it felt as if my tongue was being lacerated by little razor blades along the insides of my lower teeth. It hurt to eat, to talk, even to swallow spit. I finally “rebelled” and refused to eat. When told I had to eat to keep up my strength, I told them they were going to have to feed me through an IV, which they did. The nurses would grind up my pills in Jell-O for me to swallow them. Even that was painful.
Lullaby and Goodnight
Tony brought my “boom-box” up and several CDs from the Praise Team from Richland Hills Church of Christ. I cannot begin to express the comfort I got from those CDs. That Praise Team sang me to sleep every night. Even now, almost two years later (it’s now 2006), hearing some of those songs brings tears to my eyes. “Embrace the Cross,” “What Sin?” “Redeemer,” “I Can Only Imagine,” “The Lord is My Strength,” “I Stand in Awe,” “Where There Is Faith,” and especially “How Deep the Father’s Love.”
The Nurses
The nurses and PCT’s (Patient Care Technicians) on that floor were wonderful. They often came in to check on me and were always so kind. About a week after I got there, Dr. Singh told me he would be doing another bone marrow biopsy. Since my first one had been rather scary, I had concerns about this one. My nurse that day, Sharon, asked if I wanted her to call my husband to come be with me. I told her no, since we didn't know exactly what time the procedure was to be done. I then asked if she was going to be there, and she told me yes, that she would be assisting Dr. Singh. A little while later, she came back in my room and told me that another nurse, Tracy, would be assisting Dr. Singh, and that she, Sharon, would be there as my friend. Before the procedure, she and Tracy came in and prayed with me, then during the procedure, Sharon sat up by my head, held my hand, and just talked to me, keeping me calm. What a blessing she was!
The Anointed Room
One day, Dagoberto Martinez, one of the ministers from our church, came by to pray with me. While he was there, one of the young women from Dietary came in to get my meal tray. Realizing we were in prayer, she quickly apologized for the intrusion and left. When she returned a few minutes later, she commented about how much prayer went on in that room, referring to the two previous occupants and then myself. We discussed the importance of prayer and the power of prayer. That night I awoke, as I often did since sleeping didn’t come that easily, and I kept thinking over and over “John 2:12, John 2:12, John 2:12.” I reached for my Bible and looked at John 2:12, but nothing there seem particularly relevant, so I turned to Mark 2:12. There it was. It sent chills down my spine and made the hair on the back of my neck stand up. Mark Chapter 2 is the story of the paralytic in Capernaum who was lowered on a mat through a hole in the roof so that he might be healed by Jesus. When Jesus saw their faith, He said to the paralytic, “Son, your sins are forgiven.” Teachers of the law that were there were confused by this statement. Jesus asked them, “Which is easier: to say to the paralytic, ‘Your sins are forgiven,’ or to say, ‘Get up, take your mat and walk’? But so that you will know that the Son of Man has the authority, . . . “ He said to the paralytic, “ . . .get up, take your mat and go home.” Mark 2:12 says: “He got up, took his mat, and walked out in full view of them all. This amazed everyone and they praised God . . .” Is that not the most amazing thing?
Yet I am always with you; you hold me by my right hand. You guide me with your counsel, and afterward you will take me into glory. Whom have I in heaven but you? And earth has nothing I desire besides you. My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
-- Psalm 73:23-26
My Church
Our minister, Rick Atchley, came to see me one Wednesday. I had heard him say on more than one occasion he was not good with people, one on one. He even made the statement, “If you’re in the hospital, don’t expect a visit from me.” So imagine my surprise when I looked up that day to see him come in my room! Dagoberto had told him of his visit to me and how strong my faith was. I showed Rick my stack of cards and told him how excited I was to have received so many cards for people I didn’t even know. I shared with him about how, just before he came in, I had looked at myself in the mirror and, noticing how pale and wan I was, how my hair was falling out, looking thin and wiry, I had thought to myself, “Gosh, I look terrible.” Than, at about the same instant, I remember thinking, “But God thinks I’m beautiful.”
That night, and the Wednesday night summit, Rick shared with the congregation his visit with me. About how he had gone to see me to give me encouragement, but I had given him encouragement instead. He told them of my excitement about receiving so many cards. A few weeks later, Duane Jenks brought me the “unabridged” tape of that service.
One very important lesson I learned during my infirmity was God’s grace. He is so awesome! Now, understand, a lot of drugs were involved here, lots of pain management drugs. But two incidents stand out most in my mind. One night, when I was in so very much pain and it was too soon for another morphine injection, I prayed more fervently than I ever had. I told God that whatever He had planned for me, I was ready for. If it was His will that I die, than He could take me. All I wanted in return (don’t we all try to make “deals” with God?) was for Him to comfort my family and take care of them. It was after that that I started feeling better. It’s all about submission. Total submission
The Visitor
Another incident that happened shortly after that occurred during a night of particularly restless sleep. I awoke with my left hand up against the rail of my bed, palm partially open. It felt as if someone was holding my hand. I awoke thinking, “Is Tony crazy? What is he doing here this late? He has to get up early to go to work tomorrow.” But when I looked, no one was there. But I’m sure Someone was holding my hand. There were other times I felt Someone brushing my forehead with His Hand, caressing my cheek, straightening my covers, fluffing my pillow. I immediately guessed Who it was: my Savior was there with me throughout the whole ordeal.
Losing My Hair
It was so weird. When I had been diagnosed with breast cancer in 2000, I was so terrified of losing my hair. But since all I had to have was radiation therapy, no chemotherapy, that didn’t happen (except where the highest concentration of radiation occurred, under my left arm – oh darn the luck!). But when I lost my hair to the chemotherapy for the leukemia, it didn’t bother me at all. Except for the mess it made in the bed. When I finally got home, I had my next-door neighbor, Robin Gardner (who was a hairdresser) shave my head.
Home Again, Home Again, Jiggity Jig
Yes, I did get to go home, after almost 30 continuous days in the hospital – February 18 to March 15. I was still very weak when I came home. I remember it so vividly. Mom & Dad were still here but weren’t at the hospital when Dr Singh released me. So they had no idea I was coming home until I walked in the door. My plan had been to just walk in and say, “I’m home.” But, when I started to say the words, I got so choked up that I could hardly get the words out. But they knew what I had said. I was so glad to be home. There were times at the hospital when I didn’t think I would ever get out alive. As a matter of fact, there was one time when Dr. Singh told my family that I was sicker than I should be, and he wasn't sure I would make it.
By the time I went home, my platelet count was up to a whopping 251,000/micro liter. Normal range is 140,000 to 450,000. So, I still had a long way to go.
Mom and Dad had to go back to Kingsland soon after I came home. They had doctor appointments they had to make also. I was, as I said, still extremely weak. As a matter of fact, after they left, I was too weak to fix myself anything to eat. And nothing tasted good anyway. My taste buds were so screwed up from the chemo. Everything tasted salty. I was thirsty, but water tasted like it came right out of the ocean. I tried flavored water, but it wasn’t great. As a matter of fact, the one thing I was able to hit on that tasted okay was cantaloupe. It was something you ate with a little salt, so that was good. Of course, I didn’t put salt on it because to me, it tasted salty already. But good grief! I got so sick of cantaloupe! I had it 5 or 6 times a day! I’m amazed I can eat it even now.
But with time, I finally got to where I could eat something else. Actually, it turned out I had a condition called Thrush, which was treatable with antibiotics.
The Wig
After a couple of weeks, I was actually able to get out some. My boss, Debbie Sullivan, came after me one day and took me wig shopping. We started at the American Cancer Society, where I had been told I could get a free wig. I found one that was sort of cute. Very mod for me. Then we went to another wig place in Bedford and I found the perfect wig for me there. It was synthetic, but looked like real hair. I loved the style and the color. So I bought it. Tony liked it a lot. He had never liked me with short hair, but he really liked this “do.”
First Date
So then, Tony took me on our first “date” after getting home. We went to a Randy Travis concert at our church. It was wonderful. I got pretty tired of sitting for that long, and during a brief intermission (actually, it was while one of our ministers was preaching to the gathering), I had to get up and walk around the atrium.
The last song Randy Travis sang was “Forever and Ever, Amen.” When he got to the part about hair turning gray, Tony leaned over to me and sang along, “and if it all fell out, I’d love you anyway.” Well, I just started bawling! I don’t mean loud wailing or anything, just the shoulder-shaking stuff.
A Setback
As time went by, I kept getting stronger. I had regular weekly visits to the doctor that soon stretched into every other week. I was winning!
Then on May 7, I had a severe setback. For several months before the leukemia diagnosis, I often would have severe chest pain during or after meals. I just thought it was certain foods not setting right and it was what you lived with as you got older. Since I had never really had heartburn, I didn’t think that was it, but just that reflux stuff people were always talking about. Well, on May 7, the pain was unbearable. Tony tried everything to give me relief. He finally called the doctor. Dr Singh was out of town, but his associate, Dr Turner, responded. He told Tony a couple of things to try, sent out some prescriptions, but nothing worked. I was in excruciating pain. Of course, by then I knew what it was. I had seen my Daddy in the same kind of pain right before he had his gall bladder surgery. Dr Turner had told Tony that if none of his suggestions worked, they should consider taking me to the hospital. So Tony asked me what I wanted to do. I told him I wanted to go to the hospital. Of course, I knew that in doing so, I was sealing my fate: Natalie was to graduate from TCU on Saturday, May 8 at 2pm, and if I went to the hospital on Friday night, I was going to miss it. Anyway, Tony and Daddy took me to emergency at Harris HEB about 11pm. They immediately gave me an IV drip of Demerol, so the paid subsided after a while. (But that stupid nurse put the IV in my left wrist, right on the wrist bone! No one will EVER do that to me again!) They ran several tests, including an ultrasound. It was then that they discovered a gallstone the size of a golf ball. The gall bladder was going to have to come out. After nearly 3 hours, I told Tony and Daddy to go home. There was nothing else they could do for me. The hospital would eventually put me in a room, but we had no idea how long that would be, the Demerol was working it’s magic and I soon would be asleep anyway. Besides, Tony, Natalie and I were supposed to have gone to a reception for graduates and their families at 10am at TCU, and Tony needed to go. Of course, Natalie had no idea any of this had taken place.
So, they left, I went to sleep and later they came to get me and take me to a room on 2nd Floor Oncology.
Natalie’s Graduation, My Surgery
After getting about 2 hours of sleep, Tony went and picked up his sister, Leslie, and her significant other, David, at the hotel where they were staying and then they went and got Natalie and went to the reception. Natalie came up to the hospital around 11:30 to model her cap and gown for me. While she was there, my surgeon (Dr Pollard) came in with the news about my gall bladder. He told me it had to come out NOW, and that he had one gall bladder surgery scheduled for noon and he would get mine right after that, probably about 1pm. I told Natalie she was not to tell anyone about the surgery, because I wanted Tony and Mom and Dad to go to her graduation and not worry about me. But, as luck would have it, before Dr Pollard left, Mom, Dad, Leslie, Dave and Tony came in so they heard just enough to know what was going on. But, I insisted they go to graduation. There was nothing they could do at the hospital – I would go to surgery, then I’d go to recovery, then I come back to my room and sleep. I had had enough experience with the Oncology nurses to know I would be well taken care of.
So they all left, and about 20 minutes later, they came to take me to surgery. So, while my only child was receiving her diploma from college (Magna Cum Laude, at that), I was dead to the world in surgery having my gall bladder removed. It was a good thing, too. It turned out, the gall bladder was gangrenous and if it would have burst (which it was dangerously close to doing), in my weakened condition (brought on by the leukemia and chemo therapy), the poison that would have been released probably would have killed me. So, I dodged yet another bullet.
The sad part about it was that I had made Dr Singh plan my whole treatment regimen around this magical May 8 date so that I could go to Natalie’s graduation and I still didn’t get to go!
But, three weeks later, I was pronounced fit enough to take a trip. we had promised Natalie a trip to New York for her graduation present. I had already booked the flight before the gall bladder fiasco, so it was pretty much a done deal.
So, on the morning of May 31, Memorial Day, we left DFW for the Big Apple!
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* Once Dr. Singh became a citizen of the US, he was able to 'resurrect' his true name, Sandeep Gill.
** It turns out that after we called Natalie to tell her, she got on the Internet and notified everyone she had e-mail addresses for, and word spread from there.